Can a whirlwind happen in slow motion? It sure seems that way. Tomorrow marks 2 weeks since this all began for us. It seems like we’ve been in this forever and like it just happened yesterday. I can’t even remember what all I have posted here or on Facebook. If I double post information bare with me.
Our second round of chemo is scheduled for December 21st. We will do the switch day and night to stay with Will. We will be at the hospital 3-5 days depending on Will’s response to the treatment.
Warning: semi-graphic diaper details below.
Will was pretty receptive to the first treatment but it was hard to tell if he was in pain from chemo, surgery, or gas the days following chemo. We have had a few bouts of throwing up but haven’t thrown up all day today! Praise Jesus! As I stated previously the hospital changed Will’s formula. Since then he has had diarrhea. The doctor said to watch him at home but to bring him in if he throws up, has a fever, or changes his demeanor. It is hard to tell if the diarrhea is from the formula change, chemo, teething, his medicine, or something else.
The not knowing is overwhelming. We want to know what is causing diarrhea so we can fix it. His poor little butt is literally chapped. One part of me wants to get to the bottom of it and another is so grateful diarrhea is the worst thing that is happening right now. My anxiety is off the charts through all of this. I am anxious about our second round of chemo and it’s a week away. I am anxious every day about if he doesn’t feel well, if we need to go to the hospital, if I am getting too comfortable with him being more himself and forgetting for a moment he is sick, the list goes on. Our reality is overwhelming.
If you personally know us then you know we are in the process of building a house. Billy has completed most the work himself and is in the finishing phases. He is trying to get it ready to move into by the time we bring Will home from our next hospital stay. When we were at the hospital Billy would take night shift and work on the house during the day. I truly have the best husband and Will has the best dad. He has worked his butt off to get us in the new house. So not only do we have a sick kid at home we will be moving. It should be an eventful holiday season for our little family.
On a lighter note, we bought Will a Kidzone remote-controlled car to ride on. Thank you, Amazon we had so many laughs this afternoon. We found out real quick the car it also hand-controlled when Will began spinning himself in circles.
Also today my amazing team at work published a tshirt order to support Will. If you are interested you can find more information at https://www.bonfire.com/store/mighty-man-will/
We are overwhelmed with the support and prayers for our little man. We will never be able to repay everyone for everything you are doing for our little family. Through this whole process, I have talked to God more than I probably have in my life. I have seen the work of our Lord in our little guy every single day. I hang onto every word of the Bible verses my friend shared with me for 30 Days of Hope. I know your prayers are being heard and we are beyond grateful for your continued prayers.
